Privacy Policy

PRIVACY POLICY AND DATA SECURITY MEASURES

  • We will use your information for research: We collect information about your identity, your health, and some of your behaviors. This information will be used in research analyses and results of these analyses will be presented in scientific conferences and published. These presentations and publications will never show any information that identifies you or any other individual in the study.
  • We will not share your information: We will never sell, rent, or lease your information, and we will never voluntarily share identifying information about you without your permission.
  • You will be able to see some of your study information: When you registered for the study, you provided us with a username and a password. You can use this to sign into the study and see your Dashboard and some of the information you’ve provided to us (e.g., your Demographics Survey). You should be very careful not to provide your login information to anyone else, or they could sign in as you and be able to see that same health information. If you are worried that someone else may be using your login information, please let us know immediately, or change your password yourself through the Participant Homepage.
  • Electronic Security and Adherence to the HIPAA Privacy Rule: The Health eBrain Study follows the security guidelines of the U.S. Health Insurance Portability and Accountability Act of 1996 (HIPAA). All study data is transmitted, stored, and processed in a secure environment.
  • Mindoula uses a HIPAA compliant and secure app that protects your health information.

DATA SECURITY MEASURES

The following is a technical explanation of the measures we take to protect your data. If you have any questions about this information, please contact us by email at studycoordinator@health-ebrainstudy.org, or by using one of the other options described in the “Contact Us” section of the website.

AnthroTronix (ATinc) will host the web and database servers for the Health eBrain Study. All study information will be stored in linked data tables on the ATinc’s secure network servers. Identifying information (name and email address) will be stored in separate (but linked) data tables so that health-related data can be viewed by study staff as needed without inadvertent association with identifiers when such linkage is not required.

To stop participating in the study, please send an email to the study staff at: studycoordinator@health-ebrainstudy.org.